Welcome

Welcome! My health problems add craziness to my life. Here I post ideas I've tried, also questions I'm still asking. I have an electrolyte disorder. So I have crazy neuro stuff like complicated migraines, alkalosis, loosing my speech and paralysis. (including legs and hands) Little by little, foods had to go, they affected my brain and immune system. So I avoid like the plague: soy, dairy, gluten, nightshades, and try to avoid refined sugar. My body requires pink salt and electrolytes. I now use a speedy red wheelchair that I love. I've craved a simpler life, but how do you do that with crazy health stuff? I've already had a fire and flood, so I really don't value possessions. I value people and experiences. I am not compensated for any posts, just my opinions.

Thursday, October 6, 2016

Trying to exercise and loose weight with health limitations

Gaining weight in a wheelchair, when you wanted to loose more, is really discouraging! When you know you need to weigh less for your health problems, yet your health issues restrict you; Muscle paralysis when I do much of anything, and having to counter electrolytes to account for exercise; Having weight limit and physical restrictions is so hard! I kept trying to do "just do my best" but little by little I get slowly worse. Yesterday, I started complaining to one of my best friends, how yucky I feel and that I'm ready to drastically change, in hopes I can do at least a little better. I seriously need to see some type of improvement somewhere. I work so hard with food already its a bummer to not see measurable results. Even though I know it would be so much worse if I didn't work hard with food. I just want to see more results.

Huge concession, to show I'm really serious, and until I can get my numbers under better control, no chocolate. Its the only refined sugar (and has copper) that I buy, and I average about one chocolate bar per week. (Dairy free, soy free, and very dark chocolate).  I use a lot of fresh vegetables and fresh fruits, and wasn't quite sure how to count that sort of stuff. I mostly just do stretching and riding in my wheelchair. How do you measure that too?

My friend recommended, and I've now started "My Fitness Pal", an app. I have it on my phone and bookmarked online. So far, so good. Seems easy to enter stuff. My daughter and 3 friends signed on last night as my friends to cheer for me. My daughter told me she got a notification I burned 33 calories doing my daily night time stretching. That made me laugh. And I got a notification that my friend came in under her calorie goals and what she did for exercise. I'm seeing how this will be really good for me.

I've got a wheelchair ramp now, and my arms are getting stronger. Not my right hand yet. I have adapted by not grabbing the rim, but instead my hand covers rim and wheel, which is not quite as fine a motor movement and works well for my mobility. It's fall weather, so I'm ready to start trying a roll down my street, as often as I can. As far as I see, pedometers aren't quite ready for measuring wheelchair movement like steps. But I was Googling how wheelchair users with muscle issues try to exercise. I found a guy reference a source and found it, regarding calculating calories burned in wheelchair: http://tntoday.utk.edu/2011/10/28/wheelchair-exercise-calorie-burning/

Food not only affects me with food allergies, and being celiac...but literally everything is affected with an electrolyte problem. Even things we often don't think about like PH (alkalosis for me), and voltage gates of the cells. I'm now trying to consciously think of food as medicine. I'm learning certain foods always make me feel good. Others like avocado help me a lot, but I have to work with them, because of high naturally occurring copper and I get copper poisoning easily. (Two days last week I had to take benedryl for all the welts I kept getting.) My doctor actually put me on a low copper diet and we came up with a plan. Copper is an essential element and in many fresh vegetables that I love. It also seems the foods I like high in potassium are also high in copper. Digestion, processing food and moving food through the digestive system is done by electrolytes. So when mine drop fast, that's where I usually feel it first. I have found some foods like quinoa, squash, cantaloupe, cherries and apples always make me feel great. Anti inflammation foods usually help me, quickly. I digest fruits much easier than vegetables. So I often stick with simpler veges like spinach and zucchini on tougher days. I also do well with (and like) black beans.

Trying to meal plan and track food, ...I've always know it helps and works. But when you already feel overloaded? It just feels like too much. So I haven't been doing it. Back to my good meal planning software that I do love (previous post: good meal planner) and find easy, I've just been too overwhelmed. My friend was reassuring me that if I tracked it, I'd see results faster. And I'd see patterns easier.  Like which foods help which various symptoms. So I'm doing it now. I'm committed. The app makes it easier to enter food and weight. I don't have to think about numbers either. It calculates for me what I've been doing. I have some friends trying with me, that have similar muscle and food challenges. So it's really feeling much more doable. Friends helping and cheering for you makes all the difference.

For exercise, every day I do stretching in the morning and night, to help with spasticity etc. I've done that for years, stretching I learned watching yoga videos and physical therapists helping after my last round of injury. This time, I will also go for a long roll along my street. I tried walking my dog for exercise. That does not work, she's way too crazy and tried to pull me in the ditch a few times. I got a DVD of "Sit and be Fit", from Mary Ann Wilson. Designed for seniors and wheelchair users for safety and getting a little more cardio exercise in. I'm also going to do 2-3 exercises therapy showed me were safe for me with extra light weights.

So there's my plan. And I'm happy because I think I have a really good plan for me with my unique needs, that will make a difference for me.