Welcome

Welcome! My health problems add craziness to my life. Here I post ideas I've tried, also questions I'm still asking. I have an electrolyte disorder. So I have crazy neuro stuff like complicated migraines, alkalosis, loosing my speech and paralysis. (including legs and hands) Little by little, foods had to go, they affected my brain and immune system. So I avoid like the plague: soy, dairy, gluten, nightshades, and try to avoid refined sugar. My body requires pink salt and electrolytes. I now use a speedy red wheelchair that I love. I've craved a simpler life, but how do you do that with crazy health stuff? I've already had a fire and flood, so I really don't value possessions. I value people and experiences. I am not compensated for any posts, just my opinions.

Tuesday, November 29, 2016

Clarisa- deaf blind

I was told about this Facebook page.  Clarisa is deaf and blind. I really love the video of the dad titled, "I am so thankful for Clarisa". I love that he holds his daughter while he signs about how he loves her. On the FaceBook page in the "about" section it says, "Clarisa Vollmar is a DeafBlind baby. Instead of being an object of pity, she has inspired many people around the world. She is a beacon of hope!" .....So since I can't figure out how to link to that video, I hope you'll go check it out. 
https://www.facebook.com/ClarisaVollmar/videos/
 
Clarissa has a go fund me page. https://www.gofundme.com/ClarisaVollmar Her page has a cute picture of her laying in a basket of small balls. It says "Her videos has collectively over 5 million views in a year! Your donation for would enable us to continue make instructional and inspiring videos on Facebook, all for without charging anyone."

I have a young family member born deaf and blind. He's made huge strides. With surgeries he can hear and see a little now. He's happy, always has been. Everything is funny and a game to him. If anyone were to pity him, that would be silly. He would wonder why. I doubt anyone with disabilities wants pity or finds it helps anything. Most people I talk to are very averse to it. Personally I find it just wastes time that can be spent trying to figure out new ways to do things. Or time that could be spent reading a book while eating chocolate.  I'm really enjoying these videos and seeing this family learn and discover cool stuff.